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Research Funding Opportunities From NORD Member Organizations NORD's member organizations are invited to post information on this page about their research funding opportunities. Researchers who have questions about programs listed below should contact the organization sponsoring the RFP. NORD member organizations may submit copy for this page to webmaster@rarediseases.org. All entries should be submitted in the format used below. CANCER RESEARCH FUND / VHL FAMILY ALLIANCE 171 Clinton Road Brookline, MA 02445 Phone: 617-277-5667 x4 Fax: 866-209-0288 E-mail: research@vhl.org Web: http://www.vhl.org Disease name: Funding available for research on von Hippel-Lindau disease, with special focus on strategies that will translate into therapies that will improve the lives of people with VHL. Amount: $25,000 to $40,000 (total direct costs only) Deadline to apply: April 3, 2006 Guidelines and application: www.vhl.org/research CHILDREN'S CARDIOMYOPATHY FOUNDATION P.O. Box 547 Tenafly, New Jersey 07670 Phone: 201-227-8852 Fax: 201-227-7016 E-mail: info@childrenscardiomyopathy.org Web: http://www.childrenscardiomyopathy.org Disease name: Funding available for biomedical research on pediatric cardiomyopathy (dilated, hypertrophic, restrictive or arrhythmogenic right ventricular cardiomyopathy) Amount: $25,000 to $50,000 (total direct costs only) Deadline to apply: October 3, 2005 Guidelines and application: www.childrenscardiomyopathy.org/site/grants.php DYSAUTONOMIA FOUNDATION INC. 633 Third Ave., 12th Floor New York, NY 10017-6706 Phone: 212-949-6644 Fax: 212-682-7625 E-mail: dys212@aol.com Web: www.familialdysautonomia.org Disease name: familial dysautonomia Amount: up to $100,000 per year Length of study: 2 years Deadline to apply: TBA THE HHT FOUNDATION INTERNATIONAL P.O. Box 329 Monkton, MD 21111 Contact: Connie Anderson, Research Program Administrator Phone: 800-448-6389 E-mail: research@hht.org Web: www.hht.org Disease Name: Hereditary Hemorrhagic Telangiectasia (HHT) Amount: $50,000 Length of Study: 1 year Number of Grants: 2 Letter of Intent Deadline: January 14, 2006 11:59PM EST Application Submission Deadline: March 1, 2006 11:59PM EST The mission of the Hereditary Hemorrhagic Telangiectasia (HHT) Foundation International is to find a cure for HHT. The HHT Foundation International (HFI) announces its 2006 request for proposals (RFP) for the following two topics: "HHT: Treatment of Disease" "HHT: Mechanisms of Disease" Under this RFP researchers are invited to submit investigator-initiated proposals regarding either of the two topics. One grant (up to $50,000 US) will be awarded in the 2006 competition for each of these topics. Grant applications may be submitted by international principal investigators. Post-doctoral students or fellows are not eligible to apply as principal investigators for this RFP. Letters of intent (LOI) are mandatory, and are treated with confidentiality by the HFI and its reviewers. The letter of intent process will allow the HHT Foundation International staff to estimate the potential review workload, avoid potential conflicts of interest in the review process, and verify contact information. The LOI should be a maximum of 1 page and be submitted electronically to research@hht.org. The electronic application form can be requested by emailing research@hht.org. THE LAM (LYMPHANGIOMYOMATOSIS) FOUNDATION 10105 Beacon Hills Drive Cincinnati, OH 45241-1335 Contact: Dr. Frank McCormack, Chair, Scientific Advisory Board Phone: (513) 558-4831 E-mail: lam@one.net or frank.mccormack@uc.edu Web: http://lam.uc.edu (Details and downloadable forms) Disease name: Lymphangiomyomatosis (LAM) Amount: See descriptions below Length of study: See descriptions below Deadline to apply: September 1 THE LAM (Lymphangioleiomyomatosis) FOUNDATION offers research funding for the study of the cellular and molecular basis of Lymphangiomyomatosis (LAM). The three-year LAM Post Doctoral Fellowship Awards and Established Investigator Awards provide a maximum of $150,000, renewable for up to two additional years. Established Awardees (faculty level investigators), must have a substantial track record in research and are eligible to receive funding for technician support and supplies. More than 50% of the funds must be used for fellow salary support, and the maximum fellow salaries allowed are based on NIH guidelines for postdoctoral fellows. The balance of the funds may be used for fringe benefits, supplies, or animal costs. No overhead or indirect costs are provided. Funds not spent are to be returned to the Foundation at the end of each funding year. Pilot Project Awards are available up to $25,000. Candidates must have at least two years of experience, a PhD, MD, or equivalent degree, and perform the work in a laboratory with established expertise in smooth muscle biology, genetics of tuberous sclerosis or other LAM-related areas. Examples of competitive proposals include those that focus on the genetic regulation of smooth muscle growth or the development of a smooth muscle cell line that is representative of the LAM lesion. Mechanistic, hypothesis driven approaches of all types are welcomed. Formalin-fixed LAM tissues, dispersed LAM lung cells, genetic probes and other reagents are available. THE STURGE-WEBER FOUNDATION PO Box 418 Mt. Freedom, NJ 07970 Phone: 973-895-4445 Fax: 973-895-4846 E-mail: swf@sturge-weber.com Web: www.sturge-weber.com Disease name: Sturge-Weber syndrome Amount: $30,000 Length of study: 1 year Deadline to apply: September 1. Letter of Intent due 3 months prior. TOURETTE SYNDROME ASSOCIATION, INC. 42-40 Bell Blvd, suite 205, Bayside, NY 11361 Phone: 718-224-2999 ext. 222 Fax: 718-279-9596 E-mail: grantadministrator@tsa-usa.org Web: tsa-usa.org Disease Name: Tourette Syndrome Amount: up to $75,000; Fellowships: $40,000 Length of study: 1 year. Deadline to apply: Letter of Intent due October 17, 2005 The Tourette Syndrome Association is requesting research grant proposals in basic and clinical studies on all aspects of Tourette Syndrome. Areas of specific interest include; animal models, basal ganglia physiology, behavioral neurosciences, clinical trials, neurochemistry, neuroimaging and neuropathology. Other relevant fields of interest are biochemistry, epidemiology, genetics, molecular biology, neuroanatomy, neurology, neuropsychology, neurophysiology, pharmacology, psychiatry and psychology. For preliminary screening, a Letter of Intent briefly describing the scientific basis and relevance of the proposed project is requested. The approximate project funding level should be included. Intent letters should be sent as an email attachment to: grantadministrator@tsa-usa.org. The cover page to accompany each letter can be downloaded from our website: www.tsa-usa.org/research/intent.html. US IMMUNODEFICIENCY NETWORK 40 W. Chesapeake Ave., Suite 308 Towson, MD 21204 Phone: (800) 296-4433 Ext. 211 Fax: (410) 321-9165 E-mail: tb@primaryimmune.org Web: www.usidnet.org Disease Name: Primary Immune Deficiency Diseases Amount: $50,000 to $150,000 annually including indirect cost Length of Study: Up to two years Deadline: No Deadline Dates for Concept Proposals The US Immunodeficiency Network (USIDNET) is requesting Concept Research Proposals focused on primary immune deficiency diseases. USIDNET will consider Concept Proposals from U.S. and non U.S. citizens. All application submissions must be made online through RAMS proposalCENTRAL website https://v2.ramscompany.com/Login.asp. WEGENER'S GRANULOMATOSIS ASSOCIATION P.O. Box 28660 Kansas City, MO 64188-8660 Phone: 800-277-9474 Fax: 816-436-8211 E-mail: wga@wgassociation.org Web: www.wgassociation.org Disease name: Wegener's Granulomatosis Amount: Up to $35,000 per year Length of Study: 1 year Deadlines to apply: June 1 and December 1 The Wegener's Granulomatosis Association is requesting proposals to be considered for funding under the Association's Small Grant Program. Proposals are being sought from academic researchers who would be interested in receiving seed money grants to support pilot studies which would lead to much larger multi-year Wegener's Granulomatosis studies that could be funded by the NIH or some other sponsor of large-scale medical research. Proposals are being sought to research the etiology, epidemiology, diagnosis, treatment, and patient relief from the complications of living with Wegener's Granulomatosis. To view NORD's RFPs, click here
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